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Paula-C
#1 Posted : Tuesday, April 09, 2013 12:28:11 PM Quote
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Location: Nottinghamshire
Hello....apologies for my absence on here but been to see my daughter and grandchildren for Easter.

Well, I've now got it in black and white. Received a copy of the letter my consultant sent to my GP after my consultation with him three months down the line from starting Enbrel, it reads....

She has had a tremendous response to Etanercept. Her disease has gone into remission with a DAS score of 2.1. So far she has had no issues with the medication. Blood monitoirng remains satisfactory. I have arranged to see her in a year's time.

Hows about that then? Short, but very sweet.

I think I might frame it and put it on the wallBigGrin

Just hope it brings some hope to others who are struggling at the moment like I was last year, that there can be Light At The End Of The Tunnel.

Paula xx
Kathleen_C
#2 Posted : Tuesday, April 09, 2013 2:20:35 PM Quote
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Great news, Paula - "Remission in Writing!!" Long may it last!

Take care,

Kathleen x

m_nanasbaum
#3 Posted : Tuesday, April 09, 2013 2:52:31 PM Quote
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Dear Paula,

Really good news for you. You write, that you are on Enbrel. Was that the first anti-TNF, that you have tried? or have you had trial and errors with others?

I have been on Cimzia for 2 years together with 25 mg mtx, but it has been a rollercoaster all the way. At the moment I am having my worst flare, since I was diagnosed nearly 20 years ago, and I feel rather despondent about the future. The doctor is now talking about Rituximab. Meanwhile I have been told to increase my predniselone from 3mg to 10mg for one week to ease my swelling in my hands and knees, and then gradually to come down.

Merete
Little Miss Sunshine73
#4 Posted : Tuesday, April 09, 2013 3:38:32 PM Quote
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That's fantastic news :-)

I'm fairly newly diagonised to having RA and can I just ask, when your in remission does that mean the specialist has your medication correct & it's controlling your RA or does it mean your medication gets stopped whilst your in remission?

Thanks, Louise
lisamcb
#5 Posted : Tuesday, April 09, 2013 4:16:59 PM Quote
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Paula C

What great news - that is fantastic for you and gives me and probably other a boost to hear that it can be achieved.

All the very best

Lisa xx
annamaria
#6 Posted : Tuesday, April 09, 2013 6:34:15 PM Quote
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Lovely, lovely news PaulaBigGrin So happy for you!

It's so good to have the positive stories on here, thanks so much for posting.

Take care,
Lizx
Naomi1
#7 Posted : Tuesday, April 09, 2013 8:43:49 PM Quote
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Paula, I'm so happy for you. Can I just ask do you feel as good as the word remission suggests? Do you have any fatigue or pain? I really think this post provides a lot of hope for everyone. Long may the benefits of this drug continue for you xxxxx
mazza59
#8 Posted : Thursday, April 11, 2013 5:53:01 AM Quote
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Brilliant news Paula, hope it continues for you.
Do you have any pain or fatigue now you are in remission?
Mary x
suzanne_p
#9 Posted : Thursday, April 11, 2013 7:09:16 PM Quote
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great news Paula,

after all the worry of starting the drug i bet it seems in the distant past now,

long may this continue for you,

Suzanne x
Paula-C
#10 Posted : Friday, April 12, 2013 11:32:12 AM Quote
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Thank you for your replies.

I just thought that my good news gives hopes to them struggling at the moment. When I look back at how I was last October when I was just a blob sitting on the sofa, every single movement hurt it really is remarkable.

Here is the thread that I did once I had qualified for anti tnf's and the weeks leading up to taking it (new members may of missed this)

http://www.nras.org.uk/m...aspx?g=posts&t=3875

I also did a blog when I started, again new members may of missed it.

http://www.nras.org.uk/m...aspx?g=posts&t=3937

Merete.....it is the first one that I have tried. I have joined a patients group at my hospital, they represent RA patients and we give our views on what we think could make the department run better from a patients point of view. If the nurses agree they try to put in place what we suggest. I really must start a thread about it. Anyway, I was sitting next to a lady who is on the drug that they have offered you Riuximab, she told me it has given her her life back. On one occasion she managed to go 18 months in between infusions.

Louise.....it is a drug induced remission, I am on the right combination of drugs (I take MTX as well) to control the disease.

Naomi and Mary.....I've got to admit that over the last week or so the odd little RA niggle is there, but I am not taking any pain relief at all. It is worrying me slightly, a few of my knuckles have been tender, my shoulders on the odd occasions have hurt slightly, but really looking back to how I was I am 99% better. I suppose it is only natural after being pain free for a few months the slightest twinge will worry me. I am having a blood test do next week and then seeing RA nurse middle of May (six months check up), will know more then.

Suzanne....Yes, all that worrying for nothing.

Paula x

zena_mary
#11 Posted : Monday, April 15, 2013 11:04:10 AM Quote
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Hi Paula,
Glad to hear you have it officially in writing so to speak!! BigGrin
I'm in limbo a bit at the mo.
I had brill results with abatacept. had to come off it with skin problem and am waiting for the all clear to start it again.
I think I had lulled myself into this sense of half belief that some how I was O.K. without it now.
And for a couple of months it was mind over matter and I was doing O.K. Now however all the old problems are back, inflammation all over, fatigue etc. etc. and I have been brought back to earth with a bang.
Serves me right I suppose for being so cocky!!Smile
Try not to worry about the little aches and pains though, I think its ra's little way of just keeping us on our toes. Obviously I should have taken better note.Wub
Zena xx
Jane.
#12 Posted : Monday, April 15, 2013 4:23:25 PM Quote
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Location: where the sun always shines :o
Smile YES! Oohh Paula
So pleased for you x
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